2010 Advocacy Conference Action Alert

We need YOUR help to further our Advocacy efforts in Washington, DC!

We recognize that not everyone is able to travel to Washington for our Advocacy conference.  However, we hope you will take a moment to read this email and take action today.  You are just a couple of clicks away from helping!

Your participation in our Advocacy efforts on behalf of families affected by Duchenne and Becker Muscular Dystrophy has made a tremendous impact in recent years.  All of us at PPMD are extremely grateful for your courageous voices which are, by far, the most powerful advocacy tool of all.

Help make our voice heard this week in Washington.... 

How can YOU help? Make a Phone Call and Send an Email!

ACTION 1. Phone Call: This year we are asking House and Senate members to support a programmatic funding request within HRSA (PRONOUNCED “HER-SA”) so that the agency can include a focus on primary muscle diseases like Duchenne. By helping educate pre-school teachers, family physicians, clinic workers, and other front line health providers to understand and recognize the signs of muscle disease like Duchenne, we can dramatically reduce or eliminate the delays in getting a diagnosis for diseases like this. PPMD is requesting your support in this effort.  Please take a moment to CALL your Senators and Representatives and urge them to sign onto our multimember letter being circulate by Representative Matsui in the House and Senators Wicker and Brown in the Senate.

Wondering what to say when you call your Senators and Congressman? Dont worry, we have provided you with a script: Senate Phone Script  House Phone Script  
To look up their phone number click here

ACTION 2. Send Action Alert NOW:  Email your Representative and Senators- PPMD is requesting your support by clicking through our email action alert below. It takes two minutes!

This simple one step alert will automatically send our message to your Senators and Representative and will also allow you to forward the message to friends and family who may also want to support our Advocacy Agenda.

Thank you so much for taking the time to support these very important initiatives. 

Click here to send an email to your members of Congress!