Please sign the FY 17 Duchenne MD appropriations sign-on letter
Dear [Decision Maker],
I am writing to you today because someone I care about has Duchenne muscular dystrophy. Duchenne Muscular Dystrophy is the most common lethal genetic disorder diagnosed in childhood. Affecting about 1 of every 3,500 boys, Duchenne is typically diagnosed during the first few years of life. A muscle wasting disorder, Duchenne gradually robs boys of their ability to walk by their teenage years. Over time, their muscles weaken further to the point of paralysis, most living only until their mid-twenties. This is a race against time.