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Please vote YES on the 21st Century Cures Act (H.R. 6)
Dear [Decision Maker],
I am writing to you today to ask you to please vote YES on the 21st Century Cure Act (HR. 6). The Duchenne community supports the efforts by Congress to speed the development of therapies for our community and thousands of others who desperately need them. Duchenne muscular dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 4,000 live male births (about 20,000 new cases each year). Duchenne results in progressive loss of strength and is 100% fatal patients typically only live until their mid twenties. There are no approved treatments for Duchenne and it is a race against time for all those diagnosed.
Sincerely,[Your Name] [Your Address] [City, State ZIP][Your Email]