Support Coach Faggiano efforts to join the fight to End Duchenne with Coach to Cure MD!
Please make a donation in honor of Utica Collage and Coach Faggiano!
TEXT "CURE" to 50555 to donate $10 Coach To Cure MD
About Coach to Cure MD
Coach To Cure MD is a partnership between the American Football Coaches Association (AFCA), a professional organization for over 10,000 college football coaches and staff, and Parent Project Muscular Dystrophy (PPMD), the largest national charity devoted exclusively to Duchenne muscular dystrophy (Duchenne).
In 2008 the AFCA adopted PPMD’s Coach To Cure MD program as one of their charity efforts. One reason the AFCA was drawn to Coach To Cure MD was because of the unique parallels between Duchenne, a disorder which robs young men of precious muscle strength and college football, a game where young men are at the peak of their muscle strength.
When you attend a game or watch your favorite team on television on September 29th, you will see AFCA member coaches from around the country wearing the Coach To Cure MD patch and talking about Duchenne.
Duchenne is the most common fatal genetic disorder diagnosed during early childhood. A progressive muscle disorder that causes loss of muscle function and independence, Duchenne affects approximately one out of every 3,500 boys and 20,000 babies born each year worldwide. The disorder manifests primarily in boys because the affected gene is found on the X-chromosome. Duchenne knows no other boundaries, touching all races and cultures.
Parent Project Muscular Dystrophy (PPMD) estimates that there are approximately 15,000 young men with Duchenne alive today in the United States. Duchenne can occur during any pregnancy regardless of family history. To date, there is no cure or treatment to stop the progression of Duchenne, and young men with Duchenne typically live only into their twenties.
About the 2018 Honorary Team Captain
Jonathan Piacentino is 25 and lives in Penfield NY. Jon's dad was born and raised in Utica, NY and is alum of Utica College.
Jonathan refuses to allow Duchenne MD to define who he is and has sought every opportunity to push boundaries and exceed expectations placed upon him. His achievements include acquiring the rank of Eagle Scout, graduating from Nazareth University with a degree in Biology and minors in Chemistry and Toxicology, and volunteering at both the Rochester Museum of Science Center and the Seneca Park Zoo. Jonathan drives a van, modified with joy stick controls. He also has actively participated in clinical trials, natural history studies, and investigational studies all aimed at supporting therapy development for Duchenne, and has met with Congressional representatives and regulators to advance PPMD ‘s Duchenne community initiatives. Jonathan is a tremendous advocate and contributor to the Duchenne community.