Kevin & Kyle Friar, sons of Mike & DeAnne Friar, have been diagnosed with Duchenne muscular dystrophy (Duchenne). Duchenne is the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 5,000 live male births (about 20,000 new cases each year worldwide). Because the Duchenne gene is found on the X-chromosome, it primarily affects boys; however, it occurs across all races and cultures. There is no cure.
It weakens muscles and makes it difficult to walk, run, or play. Time is of the essence for Kyle and other young boys like them.
Mike and DeAnne Friar
About Parent Project Muscular Dystrophy (PPMD)
PPMD is the largest most comprehensive nonprofit organization in the United States focused on finding a cure for Duchenne muscular dystrophy—our mission is to end Duchenne.
We invest deeply in treatments for this generation of young men affected by Duchenne and in research that will benefit future generations. We advocate in Washington, DC, and have secured hundreds of millions of dollars in funding. We demand optimal care, and we strengthen, unite, and educate the global Duchenne community.
Everything we do—and everything we have done since our founding in 1994—helps boys with Duchenne live longer, stronger lives. We will not rest until every young man has a treatment to end Duchenne.