Please support me as I run the 2020 Chicago Marathon as part of Race to End Duchenne team along with my good friends Bonnie Pope and Emily Carr on October 11th. We will be running as "Team Teddy" for my youngest son, Teddy (2), who was recently diagnosed with Duchenne Muscular Dystrophy.
Duchenne Muscular Dystrophy (DMD) is a genetic disorder characterized by the progressive loss of muscle due to the body’s inability to make dystrophin, a muscle building protein. It is a multi-systemic condition, affecting many parts of the body, which results in deterioration of the skeletal, cardiac, and pulmonary muscles. Most boys with DMD (90%) become non-ambulatory in their early teenage years, and many don’t live past their late 20’s. But with promising research, this does not have to be the normal! DMD affects approximately 1/5,000 live male births. About 20,000 children are diagnosed with Duchenne globally each year. Because the dystrophin gene is found on the X-chromosome, it primarily affects males, while females are typically carriers. There are also cases where the gene mutated without having a mother as a carrier. I recently found out that I am a carrier for DMD which means that any daughters have a 50/50 chance of becoming carriers themselves and any sons have a 50/50 chance of having DMD. Because DMD affects the heart, female carriers are at small risk of having heart issues and cardiologist follow-ups are recommended every five years. Please help us put an end to the devastating disorder and support other families like mine by making a donation if you can.
If you prefer to mail a check, please send it to the following address and make note that the check is for "Team Teddy"/Chicago Marathon.
Parent Project Muscular Dystrophy
401 Hackensack Ave, 9th Floor
Hackensack, NJ 07601
All donations are 100% tax deductible.
Thank you for your support!