Race to End Duchenne

Race to End Duchenne

Cousins Who Care

Each year, "Cousins Who Care" trains for the Broad Street Run and chooses a different charity to support that is important to us. For our 9th year running together, we have chosen to support the Race to End Duchenne and all those living with Duchenne, a progressive, fatal muscle disorder for which there is no cure.

We will run together to honor Henry Beyer who was diagnosed with Duchenne Muscular Dystrophy shortly after his 4th birthday. DMD is the most common fatal genetic disease diagnosed in childhood and about 20,000 boys are diagnosed with it each year worldwide.

Duchenne Muscular Dystrophy is a progressive muscle wasting disease for which there is currently no cure. Without a cure, Henry is likely to be in a wheelchair by the time he gets to middle school. He will eventually lose the ability to use his upper body and he will likely die in his twenties from respiratory or cardiac complications.

This does not have to be the life Henry will live - if a cure or modifying treatment is found. There is a lot of promising research in the field taking place right now, but time is of the essence. Parent Project Muscular Dystrophy is an organization whose focus is on curing Duchenne through a comprehensive approach. Over the last twenty years Parent Project Muscular Dystrophy has participated in raising funds for clinical trials, lobbying congress, working with drug companies and being an advocate for parents and their sons with DMD.

Please Support Cousins Who Care as we race down Broad Street and Race to End Duchenne. Together, we will go the distance to end Duchenne.

To get to know more about Henry, visit 

http://www.parentprojectmd.org/henry

THANK YOU FOR YOUR SUPPORT!

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