To Raise Awareness to Those MD Strong
Please support me as I participate with the Race to End Duchenne team at the 2020 Rock 'n' Roll Washington DC Marathon on March 28, 2020. Together, we will go the distance to end Duchenne.
Duchenne is the most common fatal genetic disorder among children. To date, there is no cure or treatment to stop the progression of Duchenne.
Those with Duchenne are truly in a race against time as their muscles deteriorate further each day. Please help us put an end to the devastating disorder by making a donation.
My family is a genetic carrier of a milder yet similar form of MD called Becker that only affects boys. My family has been passing on the gene for some time and many members of my family have either been affected by the disease or are a carriers who have a 50/50 chance of passing on the gene to future offspring.
Last year I myself was tested to see if I were a carrier. My insurance would not cover the costs and thanks to Project Parent MD's Decode Duchenne registry, I found out I am not a carrier!
So I signed up this year for the Race to End Duchenne to give back to this organization that has given me the gift of hope that they are helping people like me find out their genetic predisposition to make good decisions about having children affected by this disease. They are not only helping carriers, but they have raised millions for critical research to end this deadly child disease. The Duchenne Registry is the largest, most comprehensive patient-reported registry for Duchenne and Becker muscular dystrophy that has provided for more than ten years critical data for improved research.
So I am going the distance with my training and commitment to fundraise and raise awareness. I hope I can count on your support to towards this very important cause.
If you prefer, you may also mail a check, made payable to Parent Project Muscular Dystrophy, to:
Parent Project Muscular Dystrophy
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
I have also started a tee shirt campaign where all profits raised will go towards Parent Muscular Dystrophy and allows you to vsually support the cause. Tee shirts can be purchased at:
All funds raised will benefit Parent Project Muscular Dystrophy (parentprojectmd.org) and go directly toward researching a cure. Your contribution is 100% tax deductible.
Thank you for your support!
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