Running for James Apollo
My grandson, James, has Duchenne Muscular Dystrophy. Duchenne is the most common fatal genetic disorder among children. To date, there is no cure or treatment to stop the progression of Duchenne. This muscle wasting disease that affects all the muscles in the body; arms, legs, heart and lungs. His body is not able to create the dystrophin needed to repair the muscles after they are used so the muscles become fatty and weak rather than growing and repairing. However, current medical advances in gene therapy and pharmaceutical development makes the future seem brighter that a cure can be found.
On March 28, 2020, I will be running a 5K race, in Washington D.C. to help fund a cure for this affliction. I’m running for the Parent Project Muscular Dystrophy (PPMD) team. PPMD takes a leading role for Duchenne MD by supporting government lobbying, education, certification of Duchenne's facilities, research and the coordination of drug testing trials. Please use the link on this page to support me.
If you prefer, you may also mail a check, made payable to Parent Project Muscular Dystrophy, to:
Parent Project Muscular Dystrophy
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
(Please place my name/RnR DC in the memo field)
If your employer matches charitable contributions, please let them know of this donation so they can match your donation.
All funds raised will benefit Parent Project Muscular Dystrophy (parentprojectmd.org) and go directly toward researching a cure. Your contribution is 100% tax deductible.
Thank you for your support!
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