Support Coach To Cure MD in honor of Samuel Springer
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About Coach to Cure MD
Coach To Cure MD is a partnership between the American Football Coaches Association (AFCA), a professional organization for over 10,000 college football coaches and staff, and Parent Project Muscular Dystrophy (PPMD), the largest national charity devoted exclusively to Duchenne muscular dystrophy (Duchenne).
In 2008 the AFCA adopted PPMD’s Coach To Cure MD program as one of their charity efforts. One reason the AFCA was drawn to Coach To Cure MD was because of the unique parallels between Duchenne, a disorder which robs young men of precious muscle strength and college football, a game where young men are at the peak of their muscle strength.
Robert E. Lee High School, where I am a Sophmore and my brother Noah is a Senior, will be hosting an event on September 14th. When you attend this game or attend/watch your favorite team on television nationally on September 28th, you will see AFCA member coaches from around the country wearing the Coach To Cure MD patch and talking about Duchenne.
I was diagnosed with Duchenne when I was 7. Duchenne is the most common fatal genetic disorder diagnosed during early childhood. A progressive muscle disorder that causes loss of muscle function and independence, Duchenne affects approximately one out of every 5,000 boys and 20,000 babies born each year worldwide. The disorder manifests primarily in boys because the affected gene is found on the X-chromosome. Duchenne knows no other boundaries, touching all races and cultures.
Parent Project Muscular Dystrophy (PPMD) estimates that there are approximately 15,000 young men with Duchenne alive today in the United States. Duchenne can occur during any pregnancy regardless of family history. To date, there is no cure or treatment to stop the progression of Duchenne, and young men with Duchenne typically live only into their twenties.