Ultrarunning to End Duchenne
Please support me as I participate in the Dirty German Endurance Fest in May on behalf of the Run for Our Sons (RFOS) team. I've been wanting to try an ultramarathon for some time now, and one over-caffeinated morning during winter break, I took the leap and signed up for a 50-mile run (GULP!). Can I actually run 50 miles? I have no idea, but I'm training hard and I have great motivation to get me through the tough miles: Aidan.
My first run with the RFOS team was a half marathon in 2010. Aidan was still walking then but slowly losing strength and stamina. Over the years, I’ve been running longer distances and more challenging back-to-back races at the same time that Aidan has been losing more physical strength and abilities.
I have watched my son stop walking, become unable to roll over in bed, lose the ability to raise his arms to hug me. So, I run harder and longer. I have watched his cardiac function gradually decrease. So, I strive to become healthier. When I fear that time is running out to make a difference for Aidan, I look at the progress research has made over the last five years or so. There is promise for meaningful treatments. I need to keep running for Aidan and for everyone who lives with Duchenne.
Please consider making a donation to help us put an end to the devastating disorder that affects Aidan and so many families that I know and love.
If you prefer, you may also mail a check, made payable to Parent Project Muscular Dystrophy, to:
Parent Project Muscular Dystrophy
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
(Please note that the check is in honor of Maria McDonnell/RFOS)
All funds raised will benefit Parent Project Muscular Dystrophy (join.parentprojectmd.org) and go directly toward researching a cure. Your contribution is 100% tax deductible.
Thank you for your support!
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