Race to End Duchenne
A few years ago, I had this crazy idea that I wanted to run a marathon. I know, who gets up one day and says. "Hey, I want to run a marathon!" Probably people other than myself. Well life kind of got busy and the desire to run a marathon died down.
Then one day I get a phone call from my brother. I've had a number of phone calls in my life that brought about devestating, life changing news and this, unfortunately, was one of them. My brother tells me that they found out that their son Clayton has a form of musclar dystrophy. I felt such sorrow and heart break for them, knowing that their lives were just shook to the core. Their faith and relationship with God has kept them strong as they continue to navigate through this new territory.
I can't do much to be helpful to them, other than offer my prayers, my support, and my presence. But what I can do is raise awareness and help raise funds to research treatments for muscular dystrophy. Running a marathon is my way to be a help and to show my support for Clayton. Please support me as I participate with the Race to End Duchenne team at the 2019 Rock 'n' Roll Las Vegas Marathon on November 17, 2019. Together, we will go the distance to end Duchenne. I know that the goal is set at $1000, but I'd like to blow that out of the water so please consider giving to this cause.
Duchenne is the most common fatal genetic disorder among children. To date, there is no cure or treatment to stop the progression of Duchenne.
Those with Duchenne are truly in a race against time as their muscles deteriorate further each day. Please help us put an end to the devastating disorder by making a donation.
If you prefer, you may also mail a check, made payable to Parent Project Muscular Dystrophy, to:
Parent Project Muscular Dystrophy
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
(Please note that the check is in honor of my name/RnR Las Vegas)
All funds raised will benefit Parent Project Muscular Dystrophy (parentprojectmd.org) and go directly toward researching a cure. Your contribution is 100% tax deductible.
Thank you for your support!
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