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On May 3, 2020, I will be riding the Triboro Bike Tour to support Parent Project Muscular Dystrophy again.
I’m hoping to be luckier with the weather this time, but no matter what I will ride anyway and I’m hoping to ride with my friends like we did last year, it was fun. After a couple of futile attempts, I decided that it is better not to ride with my son he’s still young and I would like to complete 40 miles, we will have other opportunities.
Agus continues to grow, besides his funny gait and occasional falls he is a pretty normal kid and most important: he is happy. I’m hoping that some medical breakthroughs will happen soon before he begins to lose function and I also hope than once discovered such treatments will be available to everyone who needs them.
For this reason, I’m supporting PPMD because they help me through difficult times, they educate me around my son’s condition, they fund research and mostly the advocate for our sons.
Please join my team Agus4Ever or donate to our campaign, help us End Duchenne!
* Duchenne is the most common fatal genetic disorder among children, it usually runs in families, it’s inherited from mother’s and it’s manifested in boys (although in very rare occasions females can be “manifesting carriers”).
One-third of the patients develop new, spontaneous mutations, without any family history, this is what happened to our boy.
To date, there is no cure or treatment to stop the progression of Duchenne.
Please help us put an end to the devastating disorder by donating or joining our team: Agus4Ever
If you prefer, you may also mail a check, made payable to Parent Project Muscular Dystrophy, to:
Parent Project Muscular Dystrophy
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
(Please note that the check is in honor of Agus4Ever Five Boro Bike Tour)
All funds raised will benefit Parent Project Muscular Dystrophy (parentprojectmd.org) and go directly toward researching a cure. Your contribution is 100% tax-deductible.
Thank you for your support!
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