Matthew's Miracle - "We run because he can't"
The summer before my son Matthew turned 7, we got his diagnosis. We were destroyed. The weeks and months that followed that awful day, were brutal. Learning about what Duchenne was and what was going to happen to my son was pure hell on Earth. The agony I felt as his mother has no description. I remember thinking, "this cannot be real" or the constant thoughts of "they must have got this wrong" We learned of milestones that would haunt us. We prayed that they would never come. But they did. Matthew lost his ability to walk at 12 years old, after a fall that resulted in a broken hip. Then one by one the milestones came, he can no longer walk, lift his arms, bathe, toilet himself, he cannot dress himself, shave or groom. Matthew needs care 24/7 and cannot be left alone as he has no ability to care for himself. Imagine going through your teen years having to ask your mother to toilet you, or shave you. The simpliest daily tasks that we all take for granted. Imagine having an itch on your nose and having to yell for someone to come scratch it, or wanting to roll over in bed at night or reposition yourself, but you can't. You have to call for someone to do it for you. Watching year after year your friends playing in the snow and you can't because your wheelchair won't make it in the elements. Wanting to go swiming in a pool but unless there is a Hoyer lift, there is no way for you to get in. Matthew, by the grace of God and by keeping our faith, is 21 years old. He has surpassed the age they told us to prepare our goodbyes. Statistics say he should not be here, but he his. Myself, Tom, Tommy, Jess, Danielle and Kris, dedicate our daily life to make sure Matthew has what he needs, and that all his needs are met. It is beyond description to try and explain what it is like to live in fear of the unkown. We make sure to live each and every day as best we can for our Matthew and our family. We constantly try to stay positive and let him know that we are all in this fight with him to make sure he is with us for as long as possible. We pray every day that a cure is found to save him and all the other beautiful young boys. So, after a few years of not particaptimg in the run for our sons marathon, this year I will be along with my very dear friend Robin Gannon! We have teamed up and will be traveling to the Marathon this January! Together we will run for Matthew, WE WILL RUN BECAUSE HE CAN'T! We are joining the fight to end Duchenne and we hope you will support us. I pray that a cure can be found to save my son, and pray that no other mother has to endure this unimaginable nightmare. PLEASE CONSIDER A DONATION TO HELP FUND RESEARCH THAT WILL ONE DAY FIND A CURE AND END THIS NIGHTMARE! AND NO OTHER MOTHER WILL HAVE TO HEAR THOSE AWFUL WORDS.
WE RUN BECAUSE HE CAN'T!! #keepthefaith
Duchenne muscular dystrophy is the most common fatal genetic disorder among children. THERE IS NO CURE!
Those with Duchenne are truly in a race against time as their muscles deteriorate further each day. THERE IS NO CURE!
But there is hope. There is YOU. Please help us put an end to the devastating disorder by making a donation and supporting my race.
You can donate by clicking the button above, or if you prefer, you may also mail a check, made payable to Parent Project Muscular Dystrophy, to:
Parent Project Muscular Dystrophy
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
(Please note that the check is in honor of my name/Disney World)
All funds raised will benefit Parent Project Muscular Dystrophy (parentprojectmd.org) and go directly toward researching a cure. Your contribution is 100% tax deductible.
Thank you for your support!