Welcome to My Personal Page
This is really personal folks. Lucas, my precious 15-year old son is at a critical juncture with this disease. He's on the brink of losing ambulation, and this is the one thing I know how to do to keep hope alive and show him that we WILL find a cure for him. This stuff matters to him, to see his Mom going ALL in to raise critical funds for research.
Please support me as I participate with the Race to End Duchenne team at the 2020 Rock 'n' Roll Washington DC Marathon on November 7, 2020 (originally scheduled for March 28, 2020). Together, we will go the distance to end Duchenne.
Duchenne is the most common fatal genetic disorder among children. To date, there is no cure or treatment to stop the progression of Duchenne.
Those with Duchenne are truly in a race against time as their muscles deteriorate further each day. Please help us put an end to the devastating disorder by making a donation.
If you prefer, you may also mail a check, made payable to Parent Project Muscular Dystrophy, to:
Parent Project Muscular Dystrophy
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
(Please note that the check is in honor of Karla Kramer/RnR DC)
All funds raised will benefit Parent Project Muscular Dystrophy (parentprojectmd.org) and go directly toward researching a cure. Your contribution is 100% tax deductible.
I thank you, and more importantly, Lucas thanks you for your support!
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