Support Ben's Buddies
Please support me as I push Ben in an adaptive jogging stroller through the Richmond Half Marathon with the help of some family and friends. We will be raising money for Run for Our Sons.
Ben is a typical sevn-year-old little boy. He loves first grade and is reading like crazy. He loves math and science and still wants to be a paleontologist when he grows up (even though his favorite animal is now a shark). Ben loves his big sister and big brother, and they adore and protect him. Ben lights up every room he walks in and captures the hearts of those he meets. 4 years ago, our family's world was turned upside down when Ben was diagnosed with Duchenne Muscular Dystrophy. This progressive muscle-wasting disease will rob Ben of the abilty to walk during his teenage years. Life expectancy for boys with Duchenne is currently about 25.
Duchenne is the most common fatal genetic disorder among children. To date, there is no cure or treatment to stop the progression of Duchenne.
As I have coped with this diagnosis as a mom, I have continued to run and have found strength in the sport I love. In November, I will be adding Ben to the mix. For the first time, Ben will be joining me for a long race. I have pushed him in 5 K races, but this time it's 13.1 miles!
Those with Duchenne are truly in a race against time as their muscles deteriorate further each day. Please help us put an end to the devastating disorder by making a donation.
Together, we will go the distance to end Duchenne.
If you prefer, you may also mail a check, made payable to Parent Project Muscular Dystrophy, to:
Parent Project Muscular Dystrophy
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
(Please note that the check is in honor of my name/RFOS)
All funds raised will benefit Parent Project Muscular Dystrophy (join.parentprojectmd.org) and go directly toward researching a cure. Your contribution is 100% tax deductible.
Thank you for your support!
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