Welcome to Our Personal Page
As a family we have signed up to participate with the Race to End Duchenne team at the 2020 Walt Disney World Marathon Weekend in January. We are joining the fight to end Duchenne and we hope you will support us. (PS the kids don't know yet either...shhhhh.)
Duchenne muscular dystrophy is the most common fatal genetic disorder among children. Those with Duchenne are truly in a race against time as their muscles deteriorate further each day. To date, there is no cure.
Our "nephew", Brendan, is fighting this battle each and every day. Brendan's mom and I have been dear friends for the last 20 years and have celebrated many triumphs and challenges that her sweet son is facing on this difficult road. Brendan's family is like family to us. We are in this fight together and we hope that one day -- we will end Duchenne. PPMD is an amazing organization founded in 1994, that has been at the forefront of helping families and investing in research and treatments for boys like Brendan.
There is hope. There is YOU. Please help us put an end to the devastating disorder by making a donation and supporting our race. We understand that this time of year brings about many financial commitments. We ask that you consider donating even just a small amount as every dollar counts! Perhaps consider what you would spend on lunch or coffee for the day...or the week. We greatly appreciate all of the support.
You can donate by clicking the button below, or if you prefer, you may also mail a check, made payable to Parent Project Muscular Dystrophy, to:
Parent Project Muscular Dystrophy
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
(Please note that the check is in honor of Margo Cicciarella/Disney World)
All funds raised will benefit Parent Project Muscular Dystrophy (parentprojectmd.org) and go directly toward researching a cure. Your contribution is 100% tax deductible.
Thank you for your support!