Race to End Duchenne- Chicago Marathon
I began running just 3 years ago- originally, it was specifically with the purpose of getting to an 8k distance for the Shamrock Shuffle in March of 2017 to fundraise for Duchenne research. I developed a love for the peace and mental clarity running provides me. Since then, I’ve participated in several 5k and 10k runs and a couple of half marathons. I was also able to run the Rock ‘n’ Roll Half Marathon in July 2018 (also fundraising for Duchenne research). I’m just crazy enough to have decided to sign up for the 2020 Bank of America Chicago Marathon on October 11, 2020 as part of the Race to End Duchenne team. My dear friend, Anne, has agreed to run with me. Together, we will go the distance to end Duchenne.
Duchenne is the most common fatal genetic disorder among children. To date, there is no cure or treatment to stop the progression of Duchenne. As most of you know, my two youngest sons, Samuel (6) and Josiah (4) both have Duchenne Muscular Dystrophy. I’m running in honor of them and all the other boys and young men living with Duchenne.
Please consider supporting our team (SamJo Buddies) as we train and advocate and educate and pray and fundraise for such an important cause. Our ultimate team goal is $7,900 to represent the 79 exons of the dystrophin gene (dystrophin is the protein the boys with Duchenne are missing- it kind of acts like the “glue” of the muscles- allows them to repair and rebuild).
Those with Duchenne are truly in a race against time as their muscles deteriorate further each day. Please help us put an end to the devastating disorder by making a donation.
If you prefer, you may also mail a check, made payable to Parent Project Muscular Dystrophy, to:
Parent Project Muscular Dystrophy
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
(Please indicate Christena Estby/Chicago Marathon in the memo section.)
All funds raised will benefit Parent Project Muscular Dystrophy (parentprojectmd.org) and go directly toward researching a cure. Your contribution is 100% tax deductible.
Thank you for your support!
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