Acting a bit Dopey...
Once again, I have signed up to participate with the Race to End Duchenne team at the 2020 Walt Disney World Marathon Weekend in January. However, this time, some may call me a bit "dopey" since I thought, "Why not run every race of the weekend?" So, I will be running the 5k on Thursday, 10k on Friday, half marathon on Saturday and full marathon on Sunday, or better known as the Dopey Challenge.
For those unfamiliar with Duchenne muscular dystrophy, it is the most common fatal genetic disorder among children. Yet, many people do not know about it. This is one of the reasons why I run... to bring awareness to this genetic disorder. Those with Duchenne are truly in a race against time as their muscles deteriorate further each day. And remember, our heart is a muscle so most succumb to this awful disorder from heart failure. To date, there is no cure. This is another reason why I run... to help raise funds to find a cure so those in the future will only read about this disorder in history books.
But the main reason why I run is in memory of my brother, Matthew. I run because he couldn't. I run because he would have given anything to run just one mile, let alone the 48.6 miles that I will be running over the marathon weekend. I run because I don't want other sisters losing their brothers far too early in life.
Here's where you come in... Please help us put an end to this devastating disorder by making a donation and supporting my race. I challenge those that are able to make a donation of $48.60 - the number of miles that I will be running in 4 days. However, any amount donated goes to finding a cure. So even a $5 donation goes a long way.
You can donate by clicking the button above, or if you prefer, you may also mail a check, made payable to Parent Project Muscular Dystrophy, to:
Parent Project Muscular Dystrophy
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
(Please note that the check is in honor of Nicole Bielick/Disney World)
All funds raised will benefit Parent Project Muscular Dystrophy (parentprojectmd.org) and go directly toward researching a cure. Your contribution is 100% tax deductible.
Thank you for your support!