Together we will END DUCHENNE!
In January 2016, our family began running in the Disney Marathon weekend together. Garrett and Charlotte began with the 5k and Randy and Amber with the half marathon. This January, we will lace up our shoes again—Charlotte will run 9.3 miles, Garrett will be pushed for 22.4 miles and Randy and Amber will run 48.6 miles each. Since 2016, we have logged hundreds of miles as a family to raise awareness and funds to find a cure for Duchenne muscular dystrophy for our son and brother, Garrett. Please support us as we participate with the Run For Our Sons team at the 2020 Walt Disney World Marathon Weekend. Together, we will go the distance to end Duchenne for Garrett and the countless others affected.
Duchenne is the most common fatal genetic disorder among children. To date, there is no cure or treatment to stop the progression of Duchenne.
Those with Duchenne are truly in a race against time as their muscles deteriorate further each day. Please help us put an end to the devastating disorder by making a donation.
If you prefer, you may also mail a check, made payable to Parent Project Muscular Dystrophy, to:
Parent Project Muscular Dystrophy
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
(Please note that the check is in honor of Sapp Family/Disney World)
All funds raised will benefit Parent Project Muscular Dystrophy (join.parentprojectmd.org) and go directly toward researching a cure. Your contribution is 100% tax deductible.
Thank you for your support!