10th Year Running For Sean Crosby to End Duchenne Muscular Dystrophy
January 8-12, 2020 Walt Disney World Marathon Weekend
We're joining together for our Tenth consecutive year as Sean's Dream Team to raise funds and awareness to support Parent Project Muscular Dystrophy's mission to end Duchenne muscular dystrophy, a progressive, fatal muscle disorder for which there is no cure. Last year over 130 runners joined the Race to End Duchenne and raised over $400,000. We are making an impact!
Those with Duchenne are truly in a race against time as their muscles deteriorate further each day. Please help us put an end to the devastating disorder by making a donation or by joining our team.
All funds raised will benefit Parent Project Muscular Dystrophy (parentprojectmd.org) and go directly toward researching a cure.
Thank you for your support! Your gift will make a difference in the lives of many!
Click on Donate Now or Make Gift button on the right to make your donation.
IMPACT OF YOUR INVESTMENT IN PPMD
- 2019 Walt Disney World Marathon Weekend $400,000 raised
- $50M+ into Duchenne research and therapy development to date
- 10YRS added to average lifespan due to PPMD-led advances in care
- $500M Federal funding leveraged into Duchenne research
- Two U.S. drug approvals with additional therapies in development
ABOUT SEAN CROSBY: The Star of Sean's Dream Team
Sean is a young man who loves sports, hanging out with his friends and family and teaching chess. His passion is the NFL and specifically the Carolina Panthers.
But Sean's life is not that typical, as he and his family face the daily challenges battling Duchenne MD. Our team is excited to help fight Duchenne MD in support of our hero, Sean.
DUCHENNE MUSCULAR DYSTROPHY
Duchenne muscular dystrophy is an inherited disorder that involves rapidly-worsening muscle weakness.
Duchenne muscular dystrophy leads to quickly worsening disability. The life expectancy with this disease is usually about 25 years of age. Patients typically suffer at the end from fatal lung disorders.
Parent Project Muscular Dystrophy (PPMD) has acted as a catalyst — funding research that is both promising and cutting edge. PPMD has created a drug development initiative on validated targets (Project Catalyst) to invest in the generation of boys currently affected by Duchenne. As a result of these investments, the field is ripe with promise. Your donation can continue to advance the promise to provide a cure.
Duchenne muscular dystrophy is caused by a defective gene for dystrophin (a protein in the muscles). However, it often occurs in people without a known family history of the condition. Duchenne muscular dystrophy occurs in approximately 1 out of every 3,600 male infants.
There is no known cure for Duchenne muscular dystrophy. Treatment aims to control symptoms to maximize quality of life. Gene therapy may become available in the future.
Activity is encouraged. Inactivity (such as bedrest) can worsen the muscle disease. Physical therapy may be helpful to maintain muscle strength and function. Orthopedic appliances (such as braces and wheelchairs) may improve mobility and the ability to care for yourself.