Welcome to My Personal Page
My first half marathon for PPMD was in January 2005. This year I have signed up to participate with the Race to End Duchenne team at the 2020 Walt Disney World Marathon Weekend in January as part of Team Danny. Danny Garofalo lost his battle with Duchenne in July 2012, shortly after turning 16. I've known him and his family since shortly after his diagnosis, and his passing devastated our PPMD family. But it also renewed our resolve to continue fighting for therapies and treatments that can work for all those with Duchenne.
My son Nick is 20, living with friends near his college campus and will be a junior at UW-Whitewater in fall of 2019. His health is fairly stable, possibly in part to a study drug he's been taking for over a decade--research made possible by PPMD--but the disorder is progressing.
When Nick was first diagnosed in 2001, life expectancy in DMD was late teens. Since then, much progress has been made and we are so much closer to workable therapies, but the loss of Danny reminds us we are still in a race against time. Please help us put an end to the devastating disorder by making a donation and supporting Team Danny.
You can donate by clicking the button above, or if you prefer, you may also mail a check, made payable to Parent Project Muscular Dystrophy, to:
Parent Project Muscular Dystrophy
401 Hackensack Avenue, 9th Floor
Hackensack, NJ 07601
(Please note that the check is in honor of Gretchen Egner/Disney World)
All funds raised will benefit Parent Project Muscular Dystrophy (parentprojectmd.org) and go directly toward researching a cure. Your contribution is 100% tax deductible.
Thank you for your support!