Running for all living with Duchenne
Please help me celebrate the 15th anniversary of Parent Project Muscular Dystrophy’s (PPMD) marathon fundraising event. I have run for PPMD every year to raise awareness and to support research for Duchenne muscular dystrophy (DMD).
Each year I’ve run two half or full marathons as part of this program. Due to a running injury, I will run only the Disney Half Marathon in January and will take part in the New York City 5 Boro Bike Tour in May. As much as I’d like to run a second event, the time commitment and risk of injury increases as I get older. I will join 4 fathers who have sons with DMD to ride 40 miles on the streets of New York City. Rain or shine, this event is a unique way to see the city.
I pay my expenses to travel and run as well as my fundraising expenses. PPMD is equally as frugal in how they use their resources to support the most promising research. They are rated 90.7% by Charity Navigator, an organization which assesses non-profit credibility and achieving their goals.
Your generosity helps fund important medical research to treat people affected by Duchenne. PPMD funded early research that led to the development of first ever drug to treat Duchenne approved by the Food and Drug Administration. Duchenne is a complex genetic condition which affects every muscle, including the heart. Drug developers are testing approved drugs and new therapies to control weakness and improve survival. There are over 20 drugs in human clinical studies to improve outcomes for those living with Duchenne. My family is hopeful research will bring effective treatments and realize these clinical trials are not guaranteed to be successful.
Duchenne MD (DMD) is a progressive degenerative disorder that causes muscle weakness and loss of ability. Affected boys rarely live beyond their mid twenties and families incur considerable medical expenses. The organization helping to change this cycle is Parent Project Muscular Dystrophy. They are a 501(c)(3) non-profit committing at least 85% of money raised to research and education. Your donation is 100% tax deductable.
I am again committed to running the 13.1 miles in the Half Marathon in Orlando on January 12th and riding 40 miles May 3rd in NYC. With your generosity I will exceed my goal of raising $2700.
You can make an on-line donation by clicking on the black "Donate" button on the right above the progress meter, or send a check made out to Parent Project Muscular Dystrophy to my home address:
16 Marial Ave.
Biddeford, ME 04005
Thank you for your support!
Brian, Alice, Rachel and Patrick Denger