Running for Sam
I am running the Disney World half marathon again this year to support Parent Project Muscular Dystrophy. I was hoping to run the marathon this year, but after running the New York Marathon in November, I just don't have another 26.2 miles in me, so I will run the half marathon with Abbie Nick and Ben. This will be our fifteenth year in a row to participate as a family at Disney - I don't think I expected to still be doing this fifteen years later, and I am sure you all didn't think that I would still be asking for your support!
Sam continues to fight hard against Duchenne. His walking is more strained, and he needs help to get up from the floor, but he is still able to walk at home without assistance. The cardiac complications that came up last year have generally been controlled with a couple of new medications. He has developed some scoliosis in his back, which is pretty common for kids with muscular dystrophy. We will probably have to deal with that in the future, but for now it is just something we are watching.
Parent Project Muscular Dystrophy was founded so that all kids with Duchenne MD could grow up and live happy productive lives. PPMD has identified the most promising research prospects, with a focus on helping the current generation of boys lead longer more rewarding lives. There has been a lot of progress in the last couple of years, with the first FDA approved treatment for a small component of boys with Duchenne, along with the approval of a steroid that had previously only been available outside the US. There are other treatments in various stages of development that I believe will definitely help Sam, but it will continue to take our time and effort to get those across the finish line.
Donating through this site is simple, fast and totally secure - just click on the Donate Now tab to the right. If you want to send in a check instead, we ask that you mail it directly to our house, with a notation that it is in Sam Killian's honor. Thank you for your support -- and don't forget to forward this to anyone who you think might want to make a donation as well. Your donation to Parent Project Muscular Dystrophy is 100% tax deductible. Mail checks made out to Parent Project Muscular Dystrophy (PPMD) to:
953 Stevens Road
Rockwall, Texas 75032
You can find more information about Parent Project Muscular Dystrophy at join.parentprojectmd.org
John, Stefanie, Abbie, Nick, Ben, Sam and Sophie