Leo's Fight for a Cure
Mr. Carl Fredrik Bergstrom
Every family that has ever been confronted with the terrible reality that their child has DMD will never forget that day that changed their lives forever. In my case it was New Year’s 2011 and I was deployed to Afghanistan. I had been home on leave just a month earlier and we had celebrated the birth of my youngest boy. But amid the joy and happiness we were worried, worried over our now two year old son Leo, who still couldn’t walk properly. Just before I left to go back to Afghanistan we decided to have him tested, just like the doctor said, on the off chance that it could be a muscular disease.
Now I stood there, New Year’s Eve, desperately holding the satellite phone to my ear, trying to listen to those terrible words and feeling the whole world imploding around me. Helplessness filled with rage, sorrow and anger. How could this be? My boy, my love, my life was terminal ill. I asked question after question, desperately trying to cling on to the hope that there was something, anything that could be done but reality soon caught up with me and the hopelessness of it all sunk into my heart and scattered it forever…
This was almost eight years ago and through the sorrow and despair we came out stronger, not because of ourselves but because of our son. I don’t know a braver, stronger or happier person then Leo. I have been to University and I have been to War but no one taught me more about life and how to be a better man than my son. He has given us hope again and there is every reason to be hopeful. Today we see a rapid advancement in research for a treatment and god willing we will have a cure within the next decade.
So now is the time to all come together and do our best for our boys, to give them hope and more importantly to give them a future! Please help us find a cure!
Every donation makes a difference and helps us get closer to our goal of a future without Duchenne!
So donate now and help the fight to end DMD!!!
The money raised will go to support the work of Parent Project Muscular Dystrophy
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