Order Support Materials

 

Parent Project Muscular Dystrophy is happy to provide you with support materials regarding Duchenne muscular dystrophy. The following resources are available without cost to families residing within the United States; however, quantity limits are set to help us manage the cost associated with producing and distributing such materials. If you have additional quantity needs, or to inquire about international shipping, please call us or send us an email.

While PPMD is happy to provide these resources free of charge, we always appreciate your donations to support our mission to end duchenne. Click here to make a gift.

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Emergency Information - Wallet Card

supportmaterials_walletemergency.pngThis simple, yet extremely important card for your wallet will help you talk to doctors, nurses, and hospital administration, if your child suddenly becomes sick or injured. Available in English and Spanish.

 


 

wheelchaircard_boy_01.pngEmergency Information - Large Weatherproof Card

For Wheelchairs, Scooters & Backpacks

These new emergency cards are larger in size, weatherproof, and include a chain for easy attachment to backpacks, scooters, strollers, wheelchairs, and other mobility devices. The cards are two-sided; one side emphasizes important information for families and emergency contact information, and the other side is directed towards healthcare professionals/first responders taking care of your or your child. The cards are available with the family information in both English and Spanish.

 


 

Duchenne Info - Wallet Card

preview_DuchenneInfoCard.pngBased on idea that Arizona parent Jill Castle had, this business card is an easy way for you to educate someone you run into about Duchenne muscular dystrophy. When you are at a loss for words or don't have the time to explain Duchenne, this card is all you need to say. View Card.

 


 

edmatters_guides_thumb2.pngEducation Matters Guides

NEW! Recently updated Educational Matters for Parents and Teachers in 2020

To better assist parents and teachers in providing a quality education for the student with Duchenne, PPMD has updated Education Matters Guides for parents and teachers with the goal of optimizing the child’s, teen’s or adult’s experience in a learning environment. The guides cover everything from the basics of Duchenne and its progression to specific classroom accommodations organized by age group.

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Pencil CaseEducators Masterclass Info Cards & Pencil Case

NEW! Video-based companion to Education Matters

Our pencil case is filled with information cards for PPMD’s new Duchenne Educators Masterclass, a video-based companion to our Education Matters Guides. The program is presented in three age-specific comprehensive courses covering Duchenne basics, behavioral and learning considerations, physical therapy and occupational therapy recommendations, and more in an effort to give your academic team the tools they need to better serve your child both in and out of the classroom. We encourage you to pass these cards along to key educators and personnel in your child’s school so they have access to this Masterclass, which is available free of charge. Educators will also receive a certificate of completion that they may submit for continuing education contact hours.

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NEW! Duchenne Muscular Dystrophy Carriers: Your Questions Answered

Carrier guide cover
Being a carrier of Duchenne can affect many aspects of a woman’s life, including health care, family planning, and mental health. As part of our efforts to better understand and support carrier issues, we are excited to to provide a new comprehensive guide addressing the questions most often asked by carriers (available in both English and Spanish).
 

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