PPMD'S 2022 VIRTUAL ADVOCACY CONFERENCE

Virtual Fly-In: Tuesday, March 8

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Want to be part of history? Want to contribute to future progress in understanding, diagnosing, and treating Duchenne?

Join us for PPMD's Virtual Fly-In on Tuesday, March 8

Each year, PPMD ensures that the Duchenne community is at the forefront of the hearts and minds of Congressional leaders and champions in Washington, DC by convening our annual Advocacy Conference (this year, virtually once again) at the start of the annual Appropriations season. These efforts help to ensure that — while Duchenne may be a rare disease — we are central to the considerations of policy makers.

Over the last 21 years, Duchenne Advocacy has resulted in...

  • Over $650 million in funding for Duchenne related programs at the National Institutes of Health, Center for Disease Control, and Department of Defense.
  • A standard of care established and recently updated for all those diagnosed with Duchenne, which has markedly improved the quality of life and extended lifespan.
  • An ever-growing Duchenne drug development pipeline with over 40 companies developing drugs for Duchenne.

There is no travel or financial expense associated with this virtual event. Only your time and energy are needed to join a movement and help keep Duchenne as a priority in our legislative environment.

*Please note the virtual fly-in is only for family advocates and not for companies. Companies can contact PPMD's Ryan Fischer if interested in attending the training at ryan@parentprojectmd.org.

Basic Agenda

  • Online Training (Zoom Session)
    Thursday, March 3, 2022 between 6:00 PM - 8:00 PM ET
  • Virtual Meetings with Members of Congress
    Tuesday, March 8, 2022 (specific appointment times to be set by PPMD)

Never Advocated Before?

No problem! 25 percent of our attendees every year are brand new advocates. PPMD will pair you with other experienced family advocates and will get you well prepared ahead of our virtual meetings on Tuesday, March 8 with online educational training sessions. With the return of our virtual format, this is the perfect year to join us as an advocate!

Zoom Training Session

PPMD will lead our advocates through online educational training sessions on Thursday, March 3 between 6:00 PM - 8:00 PM ET to ensure everyone understands this year’s message and call to action. Once all advocates, both new and returning, are comfortable with the messaging you will be broken into state delegation training groups. If you are unable to attend the training session live, rest assured, it will be recorded.

Other Questions?

Please do not hesitate to email advocacy@parentprojectmd.org with any questions.

Register

We're sorry, the deadline for registering for this event has passed.