PPMD's 2019 End Duchenne Tour: Portland, ME

In an effort to reach every single family facing a Duchenne diagnosis in the U.S., PPMD has launched a multi-year community experience called the End Duchenne Tour. Combining each of the pillars that make up PPMD’s mission – To End Duchenne – the End Duchenne Tour brings updates on research, advocacy, and care to cities across the country.

FREE Meeting for the Duchenne Community

On Saturday, April 27th, the PPMD team and a roster of special guests will host a FREE day-long meeting at the University of New England packed with important information families, professionals, and support networks need to know.

  • Date & Time: Saturday, April 27, 2019, 8 AM-4:00 PM
  • Location: University of NE College of Pharmacy, 716 Stevens Ave, Portland, ME 04103
  • Cost: FREE for Duchenne/Becker community – families, professionals, and support networks
  • Agenda: Draft Coming Soon
  • Registration Deadline: April 27 or until capacity is reached

Kid's Room

There will be a supervised Kid’s Room with entertainment and crafts throughout the day. Please register your child for Kid’s Room if you plan to bring them with you!

Hotel Reservations

There is a room block available for those traveling to the meeting. A discounted rate of $111 is available for Friday 4/26 & Saturday 4/27 at the Doubletree by Hilton Portland (363 Maine Mall Road | Portland ME 04106). Rooms must be reserved by Friday, April 5 for preferred pricing. Please call (207)775-6161 and book under the PPMD room block.

We're sorry, the deadline for buying tickets for this event has passed.